Diary - LIS in a few weeks!

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Re: Diary - LIS in a few weeks!

Postby GilmoreGirl » 20 Apr 2017, 11:50

It does! Sickly sweet. I've always used a brand called pico salax for colonoscopy and it wasn't nearly as bad - just like watered down orange Gatorade.

Still, not as bad as the sludge I had to drink before an MRI one time - yuckkkkk
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Re: Diary - LIS in a few weeks!

Postby chachacha » 20 Apr 2017, 11:56

I did the Pico Salax yesterday and had a colonoscopy this morning. And while it wasn't much fun (couldn't find a vein, but tried in about 10 different places), I did think of how much worse you're having it right now GG, so that made my own ordeal much easier. I hope that yours is over soon too.
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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Re: Diary - LIS in a few weeks!

Postby GilmoreGirl » 20 Apr 2017, 12:12

Oh that's no fun chachacha! Been there, it's not pleasant, and so awful to be a pain cushion! I thank the heavens every time I have a good nurse who gets it in the first try. Hope it went well, and now that it's done you can have some food! Best part of the colonoscopy is being able to eat again after
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Re: Diary - LIS in a few weeks!

Postby chachacha » 20 Apr 2017, 12:39

Yes, this was my fifth time with the hose up my bum, and I got a clean bill of health (phew!). My veins are usually just terrible, but after being dehydrated from not being able to eat or drink anything after midnight, they became almost impossible. But again, I knew that my ordeal would be short-lived, and yours has already been so long. I'm really hoping that you have this problem solved by the end of today.
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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Re: Diary - LIS in a few weeks!

Postby GilmoreGirl » 20 Apr 2017, 16:09

Ugh and longer still.

I had a long visit with the surgeon and a painful rectal exam. The X-ray shows stool in the rectum but she can't feel it easily - so says I may have a prolapse or rectocoele. I have long suspected this - I can feel the stool stuck in there but when I push it just pushes it into this pouch and doesn't line up with the anus - so nothing is signalled to relax properly and I could push forever and only make the problem worse. After this is resolved she will send me to a colorectal special unit at another hospital that's less local. Sounds like more tests and hell to come.

I was told to take the full dose of the peglyte and if there is no effect by 1:00 pm tomorrow then I will have to go back to emergency. My surgeon will be there, so I'm to get them to call her to see me. Then they may sedate and try manual disimpaction.

But she's not convinced all the blockage is in the rectum, she says I likely have a lot more solid stool to come. So if this works or doesn't, I'm in for a horrible few days.

I'm quite upset because I had to beg her to give me an option besides just drinking this stuff. She wanted to just send me home to drink it, and then call her office next week - meaning 4 days from now - if I still need help. I said I needed something done before the weekend as I can no longer stomach food and can barely drink.

And also - the emergency room doctor (who was great) said that number one thing would be to manage my pain - take the morphine on schedule all times and double if needed. This way, there will be less pain when going and the muscle can relax a little better.

But my surgeon said to stop the morphine cold turkey right now because it's constipating.

I don't really know how in hell they expect me to pass a colon full of stool (which will likely be half hard stool and half liquid diarrhea - neither is good) without any pain management beyond Tylenol.

I phoned back when I got home and told her assistant that I will try and take as little as possible, but that I'm not going to guarantee that I won't take any. I'm planning on trying half every 4-6 hours at first, if I start going I can up the dose to 5 mg.

Meanwhile my mother is angry at me because I'm not planning on strictly following the surgeons orders...but I have had over half a year of pain and I'm not putting myself through this for days on end without any relief.

I'm petrified right now - have taken an Ativan as I was starting to have difficulty breathing.

I don't feel looked after, I don't know why something more immediate can't be done to help, like an enema under sedation even. And I'm now facing a possible new issue, along with the new hemorrhoids I've gotten since the surgery.

I have such a desire to just end this horrible life right now it's scaring me too. If this is going to be how it is now, I can't do it
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Re: Diary - LIS in a few weeks!

Postby mamafizz » 20 Apr 2017, 16:23

GG, I promise you this misery will end just get past each day one at a time, Don't think this is how it will be,I thought that too and now it is 9 months and so much better, It's just the fear coupled with what's to come, KNOW that IT WILL BE OKAY it is a benign condition and people have recovered from broken necks and horrible things it is quite hard, but you have gotten this far, it will be better soon. Your doing the best you can... Tell yourself over and over you got this and you will be better, you want to enjoy life again AND YOU WILL!!! Day by Day Girl!!! NO FEAR....
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Re: Diary - LIS in a few weeks!

Postby mamafizz » 20 Apr 2017, 16:27

What did they say the prolapse or rectocele is ? Or from.. I remember a lot of women saying they had these but they pretty much got better, maybe from straining? I am sure they fix it or it may get better on its own once your better...Nothing stays the same tomorrow could be entirely different and you could turn the corner which I am sure is soon xxo
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Re: Diary - LIS in a few weeks!

Postby mamafizz » 20 Apr 2017, 16:29

When God Heals And Restores he brings you out better than you were before!!!! Know it's coming.. because it is...hugs
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Re: Diary - LIS in a few weeks!

Postby chachacha » 20 Apr 2017, 16:36

I am very proud of you for not just trying the surgeon's next "solution", but demanding something more. And while a trip to another CRS in a different location might be difficult, at least you may finally get some better answers. I hope that you can move a lot of what's currently blocking you up now, and then get an appointment soon with the new specialist. And maybe that enema under sedation might be the next step if you can't get things out and go to emerg again tomorrow.
Fissure since about 2007
Fissure diagnosed in 2011
Diltiazem for two years - didn't work well
LIS January, 2015
Hemorrhoidectomy December, 2017
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Re: Diary - LIS in a few weeks!

Postby zinnia » 20 Apr 2017, 17:21

GG I have been in your mindset and physical nightmare more times than I would like to remember. It is a chapter. And a really sucky one. But believe me you will have great ones ahead and you will keep this in your arsenal of what is right for your body and this is how your body reacts. And when you are old like me you will be annoying to all the medical folks cause you will say "I have been there and done that and this is what works or didn't and you have to listen to me!" And you will do it for your parents and loved ones who need you to advocate for them cause you are so bloody strong and knowledgable cause you got through this really bad time.
You can always go to ER and be admitted- hand your self over and let them give you IV meds and get you thru this. Nurses can be saints.
You got this. Let your rage and determination overpower the depression. Everything can be fixed. oxo
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