Hypermobile coccyx... I think this is what the pt thinks is causing my rectal burning sitting pain. We will see what the MRI reveals..

That's interesting that pafen had a painful coccyx at some point too.
I find that if I have had a painful day, I get my husband to rub the coccyx area whilst we watch tv at night and it helps to ease things.

Alyssa, do you know what the treatment for this would be??

http://www.necksolutions.com/tailbone-pain.html

This explains it a bit I think.

I don't know what the treatment would be...

Here's another great article about tight pelvic floor muscles...

http://www.ncbi.nlm.nih.gov/pmc/article ... f/main.pdf

How is everyone going?

Well I had my EUA and colonoscopy. Everything was normal except scarring from my previous surgeries.

I explained to the CRS I have had less pain since the procedure. He said that is possible because before the scope he did a DRE and then followed by 2 finger stretching of the sphincter. He said this may have helped to relax the muscles a bit more.

He mentioned about trying Botox but most people I know it has only been a temporary fix for their condition.

So that's it. Definitely no more colonoscopies for me!

I may get a cystoscopy to rule out the chronic prostatitis side of things next. In the meantime I am going to continue to focus on pain management. I have found lyrica in 75mg doses reduces the burning pain for me by about 50%.

I will also be looking at trialing a tibial nerve stimulator from my pain management specialist.

I hope everyone is managing ok and things are somewhat bearable at the moment. Just have to keep soldiering on and I am sure something has to work for all of us eventually. Just have to keep trying!

Pafen,

Thanks for the update... Do you notice a difference when you've tried dilation in compared to the colonoscopy?

I myself had an MRI done in Friday and I'm scheduled for a phone follow up to tell me my results...

Alyssa,

I had more relief it seems from the stretching he did vs the dilation I have been doing. This makes me think perhaps I need to use a larger dilator maybe.

Good luck with the MRI. I have had a heap of those.

Pafen,
I thought you were already doing the tibial nerve stimulator? Would this be the implant??

I still haven't heard back from my CRS about the nerve stimulator.

Alyssa, good luck with your MRI results

Xxxx

Hi,

The tibial nerve stimulation will be an implanted device and target the nerves directly. My pain specialist has told me that the implanted device is completely different and more effective than just using the TENs machine.

Alyssa, is the MRI you getting of your spine? Have you been checked for spinal issues causing your rectal pain?

How did you go with the results? My MRIs have always been inconclusive.

I am not keen on using the larger dilator but I will give it ago for about 2 weeks and see what happens. I'd expect it Will give me more pain initially.