Hello Neil!

yes PLS update us!!!!


I am struggling with scraping sensations/pains when BM is bigger and harder also I get 2-3 days during the week with dull burning pain/sensations through the day .....

burning pain after BM - its for sure pelvic floor , but that scraping feeling when stool passes freaks me out cause I imagine its micro tears meaning more scar tissue

hello Neil, are you still on stool softeners?
how are you able to work?

Hi Sorry for the delay in replying.
Yes i'm still on stool softeners. One sachet at 1045am and the other at 1045pm.
So i've started a new job (toilet right next to the office so thats good). I'm lone working 3 nights a week and its all good so far. I know I will have to be a lot stricter with my diet to avoid flare ups but hopefully i can use the money for pelvic floor physio and/or accupuncture (which has cured some peoples hypertonic floor apparently). So my exercises for the pelvic floor are now:
1. Belly breathing.
A) I do it like it is shown in this video once in the morning and once at night. This replaces the breathing exercises my previous pelvic floor physio gave me.
https://youtu.be/PJprXsSvdag?si=N7hKZ39w3F3ugDLr

B) I try to to do regular belly breathing throughout the day (plenty of videos of this on youtube). One thing I do is practise it in between reading chapters in my bible (which i read everyday).

2. Pelvic Floor Exercises
I do the following exercises which can be found in the book called: Pelvic Liberation by Leslie Howard
Mountain Pose Page 149 (1-5 minutes)
Standing Pigeon Page 156 (1-2 minutes)
Cat Cow Page 140 (3-5 reps)
Tail Wag Page 142 (1 minutes)
Whilst I am still on all fours I then do this exercise at the 5min 25seconds point in this video https://youtu.be/W23bSJzEhzE?si=jQmTMP2Y87KGxYDq&t=325
Staff Pose Page 127 (1-2 minutes)
Bound Angle Pose Page 128 (3-5 minutes)
Downward Facing Dog Page 146 (2 minutes)
Supported Bridge Pose Page 158 (3-5 minutes)
Reclining Bound Angle Pose Page 160 (5-20 minutes)

My 24hour news watching seemed to creep back into my life so I have eliminated that again.

Finally and this was a good one I listened to a very old book called "The Untroubled Mind" by Herbert J Hall on my Librivox app which is a free audio book app. LISTEN TO IT. yes it sounds archaic at times but it does reinforce the point of how its hard to heal when there is so much going on in your head and encourages you to not over think. Definitely worth listening to. Any questions about the above please ask.

Hello Neil,
Wow wow - what a news!! You are so strong to work with this condition! Well done...

Thank you for detailed info on stretches and poses !!! I wasnt aware of some of them.

This evening I will look into untrabled mind- already sounds very promissing and helpful!!!
Will report back after listening to it....

Neil, when you talk about flares what do you have in mind??? Pains and sensations during BM or general dull ache burning tigthness sensations/pain through the day????


I have those scraping still with bigger BM and also there are few spells during the week of those tight pelvic floor injury symptoms- tightness mixed with dull like nerve pain is very unnerving and torturing- im shaking from terror just to tipe it for you!!!!



P.s. i stopped running and long walks cause my knees are destroyed and also too much stretching makes my hips ache.....



God heal us all and lets keep fighting the good fight


V

Flare ups for me is usually if my stools are too bulky for my tight sphincter/pelvic floor. So i am guessing that passing those stools through essentially what is a tight hole/anus rubs against the skin internally and irritating it after that it seems to get inflamed. Again this only happens now when i stray off my diet of eggs fish fingers cucumber tomato bell pepper and wholemeal bread with peanut butter. If i stay strictly to this and take my stool softners then it doesnt usually flare up. But hopefully with the continued pelvic floor breathing (belly breathing) and stretches and not watching the news 24/7 (i avoid it like the plague now and have replaced it with reading fiction and my bible more) things will continue to improve.
I would definitely try including some poached eggs in your diet. Maybe start off by eating half of one if you are anxious about it. But you need protein to heal. Also maybe go a little bit more gentle on the stretches rather than stopping altogether?

hey again Neil,

I also stick to usual diet:
papaya, mango, kiwi, water melon, a bit of pasta with butter, couscous, a bit of brad, some veggies, ton of water and fruit kefir with lemon....

If I go to the city for a whole day and fake normal the day after I am calling psychological help line and going through mega despair.....


its been like 1 year and a half for you since surgery and you are still on stool softeners....

eventually you are planning to stop them....


cause till we are softening BM - w are not over with this horror

Apologies for delay in reply but night shifts are very tiring. Yes i hope to stop the stool softners eventually. Flare ups are getting less but really need to start private pelvic floor physio in a month or so. Finances are bad not being in work for 5 years so playing catch up. Im convinced the private physio will solve it. Its just being in the UK our state healthcare is totally broken. You can wait months and years for an appointment. If i had been able to pay for private physio im sure id be healed by now. How are things with you?

UKMan wrote:Apologies for delay in reply but night shifts are very tiring. Yes i hope to stop the stool softners eventually. Flare ups are getting less but really need to start private pelvic floor physio in a month or so. Finances are bad not being in work for 5 years so playing catch up. Im convinced the private physio will solve it. Its just being in the UK our state healthcare is totally broken. You can wait months and years for an appointment. If i had been able to pay for private physio im sure id be healed by now. How are things with you?

Good morn Dear Neil,
I can imagine how challenging and beyond courageous - its to work with this condition....
Just to get your sanity collected each morning and face a day - this is like wining a triatlon !!!!

your stretches and breathing routine seems SOLID and I wonder if paid physiotherapist could make a change .....

BM are painful and I am still struggling with my FEAR of colostomy bag and unknown future if I will be able to keep my anus organ working till the rest of my life.....
Anal pressure, fullness, wet sensation, incomplete evacuation, dull pain during the day and anxiety about all this ...
I do not know if I ever will live again- or it will be surviving life ....

wish missy moo could come back and update how is she doing

peace and more healing for you

hello Neil,
how are you doing ?

those better days during the week - do you get them as well ?

hope you made some progress

kindly V

hello Rich,

I was wondering if you are still healed and
if your anus feels different after 2 surgeries ?
kinda different but not painful anymore


thanks
v

Rich44 wrote:My theory based on personal experience (and I am not a doctor) is anything that helps you have an easier BM is a bad idea in the long run. You need to learn to naturally have a pain-free BM without help. You are doing sitz baths post BM which is perfectly fine.

The reason a fissure can take forever to heal is mental. We tighten up for fear of pain and by tightening up we restrict the blood flood needed to heal the fissure and the cycle repeats itself endlessly. Then we take medications to make it easier like a stool softeners which can make the stool too soft and you tighten up even more. The stool must be bulky for a healthy normal BM.

Sitz baths after a BM are great and I recommend them. But if you are still having problems after you have a BM all while still doing sitz baths afterwards you should see the specialist again for further discussion. After the LIS and skin tag removal you should be on easy street.