Bit of a stream of consciousness this week :-)
At the moment, I really want to be out of pain. For me it's a burning pain that's wearing me down. Sleep helps, but can't spend most of my life asleep. The good news is my CRS has agreed to see me via the NHS. He's a good surgeon, but I can't really afford to see him privately any more. On paper I can, but let's say family life is complicated. He's recommended botox, so now it's just a waiting game to get that done. Meanwhile my GP has given me a fresh supply of Anoheal (Diltiazem). I was going to ask for GTN, but at the last minute decided against it. Anoheal has worked for me before, so it's a case of the devil you know.
I have suffered the Diltiazem rash, but I have a feeling this may have something to do with how fresh the supply is, just a hunch. I also have a hunch it aggravates any candida imbalance you might have. Anyway that's a subject all on it's own - let's just say that sometimes I have a problem with it, and sometimes not. At the moment I am not getting the rash, and I'm hoping it is going to stay that way.
Incidentally I have heard that some people thought that prolonged use of Diltiazem thinned the skin. I'm confused by this, Diltiazem is not a steroid, and "skin thinning" is not listed as a side effect. I wonder if this was really due to some steroidal cream that was being used simultaneously. If anyone has any experience of this I would love to hear back.
I’m so grateful to have somewhere to express myself. There really is nowhere else I can tell people what I am going through. No-one else could possibly understand.
I've been looking into Coconut Oil and Medihoney. Coconut Oil wasn't really for me, but I think possibly there may be some benefits to Medihoney. The following link I have found to be a good summary:
http://www.woundsresearch.com/article/h ... d-dressing I've therefore formulated the following plan, which worked for me last time (well mostly the same plan).
I'll be dong this for the next two months, or until I get botox.
Morning - AnohealApprox 7pm - Medihoney gelEvening - AnohealAt least one hot bath a dayAim to swim everyday (at least 4 times a week)Movicol every dayMultivitamins and Vitamin C every dayLast time I tried this regime, I was pain free after about 5 weeks, and then okay for another 4 months. Assuming I get the same result I will definitely continue to take Movicol for a good while after, and probably will continue with the Medihoney and vitamins until I am sure I am fixed (nothing like positive thinking...)
There's the general plan at least. Day 1 today :-)
LemonMan