Want my life back :-(

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Re: Want my life back :-(

Postby JHH » 01 Apr 2013, 07:54

Day 42 on nitro
Im going to take a break from updating this thread. Im in burning spasms hell again. I will return when I see some progress again.
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Want my life back :-(

Postby JHH » 06 Apr 2013, 01:20

Day 47 on nitro
Time for an update...
After the tear, I bought movicol. Now, Im taking Psyllium Husk, magnesia and movicol. Adding the movicol has made my BM's so much softer even when formed. I wish I had tried it much sooner.
As for my butt, then I have had good improvements. I literally have felt improvements from day to day. Right now Im back to where I were, maybe even a bit better :D
I have an appointment with crs on tuesday, when we are discussing botox, but right now I feel confident I can beat this thing with nitro and diltiazem.
Today I forgot to set the alarmclock, and had my BM an hour later. Normally that would potentially cause me the plug, but not today. Still nice and soft, yet formed. I even forgot to apply the nitro before BM, and it was still painfree.
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Want my life back :-(

Postby owmybum » 06 Apr 2013, 02:00

Yay for movicol!!!
Image
OMB x
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Want my life back :-(

Postby JHH » 09 Apr 2013, 06:46

Day 50 on nitro
Not a very good day, since I had more burning than usual.
Went to my appointment with the CRS, but not much to report. They dont do botox, and told me to wait for another 2 months to give the creams time to work.
Oh well, the battle continues...
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Want my life back :-(

Postby JHH » 10 Apr 2013, 05:30

Day 51 on nitro
Another bad day with hours of burning. Even got that golfball up my ass feeling again. Dammit!
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Want my life back :-(

Postby owmybum » 10 Apr 2013, 07:27

My local nhs also don't do Botox. It's normally the first line of defence.
I also get that golf ball feeling. It's not nice. If your not at work, try a soak in the bath.
I have an appointment with a private crs tomorrow to get a fresh pair of eyes on things.
Unfortunatly, all you can do is wait, and give the creams a good chance to do their thang. X
OMB x
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Want my life back :-(

Postby Rachael 1984 » 10 Apr 2013, 07:45

Sorry JHH things are not improving.
Keep your chin up! Keep going at the little beggars.
Good luck OMB tomorrow, keep us posted.
Go for it, you are paying, so go in armed with loads if questions! X
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Re: Want my life back :-(

Postby CrackinUp » 10 Apr 2013, 08:33

In case anyone reading thinks I have deserted JHH, I haven't as we talk every day on Skype instead.
I feel a bit helpless now I'm better as I really want him to follow in my footsteps. All very frustrating but we have plenty of BM banter going on believe me. I would not feel normal if I couldn't discuss each mornings pooper with him. Hehe.
Keep your chin up JHH, you WILL get over this. :)
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Re: Want my life back :-(

Postby JHH » 15 Apr 2013, 12:08

Day 56 on nitro (8 weeks now)
Still not healed... Image
Going to see the crs tomorrow. Want botox asap!
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
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JHH
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Re: Want my life back :-(

Postby JHH » 17 Apr 2013, 12:32

Day 58 on nitro.
Got the referral yesterday, to another hospital who can do botox. Now I just wait for the letter...
Been sick for the last week, but still managed to take care of my sore butt. I have added sitzbaths to my protocol a few days ago.
Will update later!
- Fissure developed in Jan '13
- Started rectogesic in Feb '13 and diltiazem Apr '13.
- Got botox Jun '13
- Healed by Okt '13, although I still had some irritation for about a year.
- New fissure April '22, healed June 2022
- New fissure 24. December 2023
User avatar
JHH
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Posts: 785
Topics: 16
Joined: 22 Feb 2013, 17:00
Location: 6 o'clock
Has thanked: 48 times
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Gender: Male


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