Botox Hem Diary

Are you having, or have you had a Lateral Internal Sphincterotomy (LIS)? Please share your experiences here, or ask any questions.

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Re: Botox Hem Diary

Postby owmybum » 03 Jul 2014, 02:04

Good luck for today Rachael..... I'm keeping everything crossed you get some answers and a plan of action!!

OMB xxxxxx
fissure after hem banding and tag removal feb 11
Pelvic floor therapy
Diltiazem
Botox June 13
Nitro
Internal flap July 14
EUA and polyps removed Nov 14
Diagnosed with neuropathy Jan 15
Diagnosed with HS EDS type 3 (causes poor wound healing )
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Re: Botox Hem Diary

Postby Rachael 1984 » 03 Jul 2014, 12:54

:poop: :afsmile: Hi everyone,
Well I'm scheduled for LIS, I have made a separate post, all details on there....
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Rachael 1984
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Re: Botox Hem Diary

Postby Roidsfizzman » 03 Jul 2014, 13:01

Hi Rachel,

WOW, this will give you the best chance to heal. I wish you the best. I know that you are concerned, but I feel that you made the correct choice.
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Re: Botox Hem Diary

Postby Rachael 1984 » 03 Jul 2014, 13:10

Hi RF,
Thanks, I really hope this can end this hell mess... 2 years is too long to suffer. I'm just scared now of having the surgery! But this is my best chance of having a normal bottom.
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Rachael 1984
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Re: Botox Hem Diary

Postby sotiredofthis » 03 Jul 2014, 13:12

Definitely is the best chance to heal. For what it's worth I haven't had any incontinence and I have IBS.
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Re: Botox Hem Diary

Postby vdb324 » 06 Jul 2014, 10:49

Rachael, I am so glad you had a date for surgery! I hope you're recovering well! You have been such a blessing to have on this board. STOT, I hope you're doing well, too! Praying and thinking of you all.
Feb. 2013 - Developed AF
July 2013 - Diagnosed AF;nifidepine lidocaine treatment
Oct. 2013 - 1st round of Botox & skin tag removal
Dec. 2013 - 2nd Botox
March 2014 - Spinchterotomy
June 2015 - Diagnosed with Pelvic Floor Dysfunction/Vulvodynia
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Re: Botox Hem Diary

Postby Rachael 1984 » 06 Jul 2014, 16:05

Thanks VDB, glad to hear you are recovering well. I'm on the waiting list for surgery... It may be a few months yet before I have surgery... Xxxx
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Rachael 1984
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Re: Botox Hem Diary

Postby vdb324 » 06 Jul 2014, 17:15

I read the thread wrong! I hope they get you in soon!
Feb. 2013 - Developed AF
July 2013 - Diagnosed AF;nifidepine lidocaine treatment
Oct. 2013 - 1st round of Botox & skin tag removal
Dec. 2013 - 2nd Botox
March 2014 - Spinchterotomy
June 2015 - Diagnosed with Pelvic Floor Dysfunction/Vulvodynia
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Re: Botox Hem Diary

Postby Alyssa » 12 Aug 2014, 13:30

Rachael 1984 wrote:The CRS examined me and he was shocked to see that my anus is almost normal? His exact words were.. Well I didn't expect to see an almost normal looking anus. Then he continued to insert a telescope and I was almost so tense I nearly came off the couch. He cannot see any Fissures, just bad irritation. Now I explained I couldn't see how this could be, as I am still getting Fissure symptoms and pain in varying degrees. He then looked puzzled and said there was no way there are any tears back there and that I might be forming new fissures and then healing. Then I asked does that mean I have high resting pressure!? His answer was I don't think so Because I got the telescope in there easily!

Ugh, what an answer! I thought they needed to do a test to determine resting pressure! I then went on to say that I am not entirely happy with this, so he has referred me to another surgeon for a second opinion, which was his idea! Weird to say the least. This just doesn't explain why I am still sore and in pain.

I feel weird and confused after this..... God knows but I really can't believe it.....

Can anybody shed some light on this, and has anyone else had a similar experience where they are still in pain but have been told it all looks okay??


Rachael,

As you know, I have been dealing with the same issues as you have been; I too have been told by doctors that I have a normal sphincter and then others have said it is tight... I'm totally confused! So even though the telescope was inserted easily, it turned out that you still had high resting pressure, huh? Did the doctors have any explanation to why that could be? Is it more tight when the fissures are active?

After reading your story, it seems that your doctor was able to see the retears right? My major fissure was detected but ever since none (what I believe to be little cuts around the anus) have been (visibly) detected upon examination :(
2/14 Fissure developed
3/14 Diagnosed w/ fissure given Nifedipine
4/14 Referred to Pelvic Floor Physical Therapy=Pelvic Floor Dysfunction
5/14 Fissure declared "healed"/chronic anal pain persists
9/5/14 Botox to pelvic floor
9/22 biofeedback
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Re: Botox Hem Diary

Postby Rachael 1984 » 13 Aug 2014, 03:24

Hi A,
Yes, it's so frustrating when you don't have a definitive answer! I basically went round in circles with the first CRS. He just kept fobbing me off, and telling me everything looked normal. I just knew it wasn't which is why I insisted on a second opinion.... The new CRS said the only way to tell if the pressure is high is to have the test. It's a small probe inserted into the anus and you squeeze on command. My understanding is that the sphincter becomes tighter over time, as after many re-tears it work overtime and becomes tighter and tighter. My CRS now thinks I'm re-tearing on a regular basis(which I know I am) and also forming small fissures too.... Although he can't see them he's willing to do the LIS as my pressure is so high. He's confident it will work and it will break the cycle of hell. I literally said to him that I can't live like this anymore.

I'm hoping I can lead a normal life again... I'm pretty scared of the surgery, but at the same time I can't live in pain. I've always got some form of pain or irritation daily, which just isn't right. Your case is definitely similar to mine, and I do hope you can find a solution. Did I remember rightly that you have pelvic issues? Xxxx
Hem Banding sept 2012
2Fissures
Nitro- Effective short term
April 2013-Botox-Effective short term
Diltazem-No effect, developed Rash
July 2014-Diagnosed High Resting Pressure
LIS performed on 17.9.14
Ongoing pain/re-tears. Awaiting pressure test results.
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Rachael 1984
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